Treatment Burden

What are the effective ways of simplifying the treatment burden of people with CF?

question ranked 1st 2017

treatment burden – the effect all the CF treatments have on everyday life

We explored this question further with surveys and focus groups

The published paper can be found here and lay summary here

Further work looking into difficulties around medication can be read about here

We are aware of several trials aiming to reduce treatment burden, inspired by this question;

  • CF STORM is looking at whether certain nebulisers can be safely stopped when people are on CFTR modulators